International CoeliacDay - 16 May 2015

 

 

Every year, the 16th May is a day we observe those affected by coeliac disease which could be

as many as 70 million people worldwide.

 

With diagnosis rates still low, many of our Member societies prepare a range of  awareness

raising activities lasting anything between a day to an entire month! These events are aimed at

helping doctors to identify the symptoms early on and also provides important information to

government institutions to gain support for those affected.

 

This is what our Members are organising over the next weeks:

 

Andorra-Associació de Celíacs d'Andorra

ACEA event

On 16 May 2015, the society is organising an information stand at a large shopping mall. A 10 % discount on gluten free products will be available there between 14-20 May with free tastings. For more information, visit their website.

 

In collaboration with a restaurant a gluten free recipe competition is also planned. The prize is a meal for two - gluten free of course!

FORTHCOMING EVENTS

 

AOECS GENERAL ASSEMBLY 2015

Dublin, 10-13 September 2015


 AOECS General Assembly 2015

 

Preparations for the General Assembly are underway and our hosts this year - the Coeliac Society of Ireland - are inviting us to their lovely city of Dublin! Register now to catch the Early Bird rate at www.aoecs2015.com.

 

 

Free From Food Expo June 2015

 

 

ICDS Prague June 2015

 

Belgium-Société Belge de la Coeliaquie 
Société Belge de la Coeliaquie

The society is sending press releases to radio and TV stations as well as newspapers. A flyer has been created to provide advice for restaurants and other catering establishments on how to prepare gluten free meals. See their flyer for more information.

 

An update has been posted on their Facebook page.

Belgium-Vlaamse Coeliakievereniging
VCV event

The title of the society's campaign is:

 

"When gluten free is more than hype"


The society is sending a press release to radio, television, newspapers and magazines. They are also promoting the International Coeliac Day on their social platforms.

 

Have a look their Facebook page and Twitter @VCVglutenvrij.

 

Cyprus-Cyprus Coeliac Association

Cyprus Coeliac society cooking course - A press release on coeliac disease will be 
  forwarded to the Cypriot Government
- A sponsored gluten-free cooking event will be 
  organized for the society’s members.
- 500 copies of a flyer on coeliac disease will be 
  handed out to the citizens of Cyprus.
 

 

Czech Republic-Spolecnost pro bezlepkovou dietu

SPBD ICDFor the 10th year running, the society is organising their traditional event ‘Forum celiaku’ to coincide with the International Coeliac day on 16 May with around 700 visitors expected to attend. Speakers include Dana Gabrovská of the Czech Federation of the Food and Drink Industries, Professor Jirí NEVORAL, a medical expert on coeliac disease and Tamara Starnovská of the Czech Nurses’ Association. 


The event is being promoted in newspaper publications, on TV, through the society’s facebook pages and their website.

 

Czech Republic-Sdruzeni celiaku Ceske republiky

 
CZ society event

The society is holding its 15th “National Meeting” on 16 May 2015 at the beautiful Emauzy Monastery in Prague. For more information, visit their website.


A wide range of services is also being offered, not only to the society's members, but also to the general public interested in coeliac disease. These include, for example, blood testing, several lectures on coeliac disease, labelling of gluten free products and licensing for the use of the Crossed Grain symbol.

 

A gluten free market is also being organized where attendees will have the opportunity to taste and buy gluten free products and talk to producers.

 

 

Estonia-Eesti Tsöliaakia Selts

 
Estonia Coeliac Society - events

The society is issuing press releases to the national media on the topic of coeliac disease in both Estonian and Russian languages.

 

They are also organising a competition on their Facebook page with many gluten free products as prizes - have a look.
 


Finland-Keliakialiitto

 

Finnish Coeliac Society Facebook pageThe society is promoting the International Coeliac Day on their social media platforms, have a look at their Facebook page www.facebook.com/keliakialiitto and Twitter www.twitter.com/keliakialiitto.

More national and regional awareness raising activities take place annually in the week 36, which is the National Coeliac Week organized by the Coeliac Society since 1996. This year week 36 falls on 31, Aug – 6, Sep 2015.

   

 

Germany-Deutsche Zöliakie-Gesellschaft e.V

   

DZG International Coeliac DayOn 16 May the following activities will take place:

11.00-11.45hrs

A procession through the city centre of Leipzig to the Augustusplatz (Augustus Square)

13.00-15.30hrs

Doctor-patients seminar on coeliac disease at the Augustusplatz campus of the University of Leipzig

12.15-16.30hrs at the Augustusplatz there will be talks on gluten-free markets and labelling of gluten-free products, cooking demonstrations on the preparation of gluten-free meals and performances by music and dance groups.

   

 

Hungary-Lisztérzékenyek Erdekképuiseletének Országos Egyesülete 

   
Hungarian Coeliac Society

A perfect way to celebrate International Coeliac Day in Hungary – with a gluten free McDonald’s burger! The society has been successful in working with McDonald’s to provide gluten free burgers in 11 of their Hungarian branches! Have a look at their website for more information.

 

The society held their General Assembly on 16th May accompanied by a gluten free food fair and tasting. This year, the society celebrates its 25th anniversary with a big party in October.

 

As part of their International Coeliac Day activities, the society’s representatives are giving interviews on radio as well as electronic and printed publications. A press release about coeliac disease and the International Coeliac Day has also been forwarded to the media.

   


Italy-Associazione Italiana Celiachia

   
AIC International Coeliac Day

From 16 to 22 May our Member society in Italy is organising numerous activities, for a full list see their website dedicated to this week, that also contains videos on how to manage gluten contamination at home. (Please note that these are only available in the Italian language.)

 

During this week, every phone call to the society’s telephone number is free of charge and will connect to a medical team consisting of a doctor, a psychologist and a nutritionist. A poster explaining coeliac disease and the gluten-free diet will be displayed in medical centres, restaurants, grocery stores and pharmacies.

 

Cooking courses, competitions and dinners will also be run throughout the week.

The slogan of the Awareness Week “1% of the World population has to eat gluten free” has been created to coincide with the slogan of the international EXPO Exhibition: “Feed the Planet. Energy for Life”. The event is taking place in Milan 1 May to 31 Oct 2015 and is dedicated entirely to food and nutrition ( see Expo). The society is also continuing with its Eating Out programme which lists all Italian catering establishments where staff are trained and monitored in the safe preparation of gluten-free meals. See the full list of 3.800 venues all over Italy.




Luxembourg-Association Luxembourgeoise des Intolérants au Gluten

   

ALIG gluten free marketThe society is organising a national information day on 10 May 2015 which consists of:


- a talk by gastroenterologist Dr Corinne Bouteloup on

  coeliac disease

- a gluten free market

- handing out information on the society’s activities in

  support of those suffering from coeliac disease

 

Download the society’s events leaflet here.

   

Netherlands-Nederlandse Coeliakie Vereniging

   
Netherlands Coeliac Society - event

The society has created a dedicated page on their website for the International Coeliac Day, see their webpage

 

The society’s members have been invited to send in their short movies or pictures about their daily life. These are placed on their website and the three best contributors will win a box of gluten free products. 

 

Have a look at one of their members' daily journey with coeliac disease.

   

Norway-Norsk cøliakiforening

   

Norway coeliac society ICD

The society is sending a press release to local and national newspapers with the title:

 

"Is it acceptable that thousands go undiagnosed?"

 

More awareness raising activities will take place in the second week of September 2015.

   

Poland-Polskie Stowarzyszenie Osob z Celiakia i na Diecie Bezglutenowej

   
Polish Coeliac Society

In collaboration with the Polish Gastroenterology Association, the society is holding a conference in Szczecin on 16 May 2015. Visitors will be able to attend several lectures on coeliac disease, associated diseases, the gluten free diet and many more.

 

Under the patronage of the Marshal of the Polish Parliament and the Mayor of Warsaw the society is running a Gluten Free EXPO III between the 22-23 May 2015. With over 70 Polish and international exhibitors this is one of the largest gluten free exhibitions in Central and Eastern Europe.

 

   Entrance is free and the programme includes:

       - a wide range of gluten-free food manufacturers

       - lectures on coeliac disease and the gluten free diet 
       - free advice from doctors and nutritionists
       - gluten free cooking demonstrations by well-known chefs
       - children's activities

 

   For more information, download the leaflet.

   

Russia-St Petersburg Coeliac Society

   
St Petersburg Coeliac Society

The Coeliac Society of St.Petersburg is celebrating 16 May 2015 with a Ball themed "Gluten free White Nights". It will be featuring "White Ballet", "Indigo" - children's modern dance group - and dancing lessons for all participants so it's dance, dance, dance! 

The event programme includes further:

 

- a gluten free exibition with product tastings

- information stands  
- children's activities
   


Spain-Federación de Asociaciones de Celíacos de España

   

FACE ICDThe society is organising a range of events and activities:

 

 

  • Breakfast with Serbian professional tennis player Novak Djokovic at the “Open de tenis de Madrid”

  • Discounts in selected restaurants, hotels and health insurance organisations

  • A video compilation of regional groups activities on YouTube

  • A press release on coeliac disease 

 

   

Spain-Celiacs de Catalunya

   
SMAP ICD

This year the society is planning a "fun fair" al fresco on 17 May 2015 to include:

 

  • representatives from the food industry informing on new developments
  • a talk on coeliac disease
  • some entertaining activities such as a mobile discotheque with real life DJ's
  • children's activities and a barbeque
   

 

Switzerland-IG Zöliakie der Deutschen Schweiz

   
IZG ICD

Throughout the month of May, the Swiss coeliac societies are organising the below events:

 

  • discounts on gluten-free meals and products in selected restaurants, hotels and supermarkets across Switzerland, for a detailed list download their programme

  • gluten-free cooking courses
   

 

 United Kingdom-Coeliac UK

   
Coeliac UK ICD

During the week of 11-17 May, Coeliac UK is organising a range of events mainly focussing on improving diagnosis rates:

 

  • Launching of a public awareness campaign on improving diagnosis rates, have a look at their website.
   

 

  • Launching of a new dedicated website on 8 May aimed at helping people carry out a self-assessment to see if they could have coeliac disease. They can answer questions related to their symptoms, associated conditions and family history. If the results are positive, advice is given to see a doctor. Funding to advertise this campaign on TV or cinema in the UK has been obtained and is being finalised.
  • Posters and videos are being displayed in doctor’s surgeries, community pharmacies and other healthcare settings. Some videos will be shown in waiting rooms at doctors’ surgeries and across a range of media platforms. 
  • A number of walks to raise awareness and funds have been organised around the country with over 300 people taking part. More information on the walks can be found here.